We understand the gravity of the situation

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Your life has been turned upside down, we want to offer you support!

The former head of the ASBH (Spina Bifida and Hydrocephalus Working Group) Ms Schlegel, who devoted herself to the lives of her members, once told us that hydrocephalus turns patients’ lives upside down. 
So we wanted to know more. To understand in more detail how people deal with hydrocephalus in their everyday life, what challenges a patient, their relatives, doctors and nursing staff can expect. We believe that “people who better understand can also help better”.

We understand the gravity of the situation

Associations

Description Document Link
www.asbh.de German patient organization for spina bifida & hydrocephalus
www.shinecharity.org.uk UK based patient organization for spina bifida & hydrocephalus
www.hydroassoc.org US based patient organization for hydrocephalus
www.nhfonline.org US based patient organization for hydrocephalus