Patient information Hydrocephalus

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Your life has been turned upside down, we want to offer you support!

The former head of the ASBH (Spina Bifida and Hydrocephalus Working Group) Ms Schlegel, who devoted herself to the lives of her members, once told us that hydrocephalus turns patients’ lives upside down. 
So we wanted to know more. To understand in more detail how people deal with hydrocephalus in their everyday life, what challenges a patient, their relatives, doctors and nursing staff can expect. We believe that “people who better understand can also help better”.

iOS and Android App

MIETHKE Patient Diary App HC&ME


Together with our cooperation partner Christoph Miethke GmbH & Co. KG we have developed the patient diary app HC&ME. The application is primarily intended to give patients the opportunity to comprehensively document and evaluate their life with hydrocephalus. Furthermore, the app also serves as a digital patient passport, which would always be with the patient and is not forgotten during visits to the doctor, for example. 
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